Careful there. Autism Awareness is Nothing to “Celebrate.”

This is why autism is not to be “celebrated”. It is not AUsome. That whole phrase is overused by well-meaning providers but offensive to us parents. Do NOT buy into the light it up blue propaganda we are all about to be fed next month during April autism “awareness” month.

The death rates rise for our most vulnerable in this country yet no alarms sound, no outrage over the deaths, because publicizing autism means the begging question, where on earth did all these children with autism come from? 

Autism spectrum disorder is a disability few properly understand, children who look “normal” but are far from typical, don’t draw attention and yet they find water or danger so easily. 

These children (and adults too) are not always aware of danger, parents are hyper-vigilant every moment of every day. I know because we have been and are still super stressed and vigilant for our son Tyler who at age 15 goes to a small private therapy school and we now can reason with him but he is easily distracted and can never be left unattended, this is Autism for millions.

Autism Is Medical

Someone sent this link to me and suggested I share. I agree with most of what it has to say…

Autism is medical. Tyler was officially given the diagnosis of encephalopathy NOS many years ago by a neurologist, and then eosinophilic esophagitis, and then irritable bowel syndrome, and then metabolic disorder. You get the idea. These kids are medically sick we just call it autism to package it nicely and this is why please do NOT buy into the light it up blue nonsense groups like autism speaks will be selling during “autism month” in April.

Nothing to celebrate here folks we need real conversation and real answers to help this generation of sick kids.



What Keeps Autism Moms Awake At Night?

I had so many autism moms of younger kids send me this after they saw my post that I took Tyler out for lemonade frozen ice in Fulshear by myself Saturday night. They know Tyler is 225 pounds 5’10” now and even after years of therapy still on the low to moderate end of the autism spectrum. For those that asked how, years and years of 14 hour therapy days and we are still not done.

This mom in this video says what all of us are afraid of when they are little. What happens when they are bigger than me and have a meltdown in public? And the real question that keeps us up at night, what happens when I am gone who will take care of him?

This mom says this (and more) so eloquently I wanted to share her post. There are many “lasts” for parents as they go through the seasons of raising kids – only other special needs parents get the “last” time you really thought this will be ok.